Hi everyone! I am so sorry for the long wait for an update, and this is probably my shortest update ever. I’ve outlined my full post and it’ll be an entertaining read but I just don’t have time right now to tell all the stories and updates that have filled the last few crazy weeks. Between moving home from school, a short vacation, and visiting family for Thanksgiving, I’ve spent nearly all my free time working on finishing up my classes for the term and writing my final papers. I only have one typical exam this term, but the last two weeks of the term included seven papers, counting written exams, so I’ve been typing away in my hospital room. I received my modified CAR t-cells on Wednesday (Dec 2) and once they expand enough in my body, I’ll have intense flu-like symptoms and potential blood pressure or neurologic issues from the cytokine storm. I don’t know when it will hit, so I’ve been rushing to get my work done before then. I’m inpatient at NIH and it’s been quite an experience. It’s only been about a week and I already have some great stories but I promise I won’t forget them! Anyway, I figured it was time for a quick update since people keep asking me what is going on. Plus, today is my second birthday (two years since transplant) and I didn’t think that day should pass without a post, even though it’s short. These past two years have been crazy, but about half the time was spent healthy and that was a wonderful gift. My sister will always be my hero and huge shout out to everyone who has joined the bone marrow registry since then! Thoughts, prayers, messages and jokes are always appreciated! I love you all! Real update coming as soon as possible…
2 Comments
Grace Cortez
12/6/2015 09:44:07 pm
Thinking and praying for you🙏Such a strong young woman you are! I'm impress by your resilience and responsibility with your studies. NIH is a very impressive place, you will meet so many great people and make friends.
Reply
Berti Coulter
12/6/2015 10:12:48 pm
Thinking of you & admire your perseverance & commitment to your studies. I see it's turtleneck season!
Reply
Leave a Reply. |
AuthorI’m Karen. I was originally diagnosed with Acute Lymphoblastic Leukemia (ALL) in August 2004 when I was 10 years old. When I was working on my college and scholarship application essays two years ago, I wrote about my journey. Although it was a rough few years, it became such an influential part of my life that I can’t, and wouldn’t want to, imagine my life without having had cancer. I called it the worst best thing that ever happened to me. Archives
April 2022
Categories |